Tomorrow kicks off Rare Disease Month, an annual extension of Rare Disease Day, aimed at highlighting the experiences and challenges families navigating rare diseases face, while providing the community an opportunity to support the cause all month long.
Portland-based, Grammy Award-winning, alternative rock band, Portugal. The Man has announced several February activations, all designed to help rally their audience and the public around funding rare disease research and treatment. PTM will be partnering with the Portland Trail Blazers, Paul Williams, Cinema 21, Revolutions Per Movie, Stormbreaker Brewing, AVP Wine Collective, and more.
“As our family navigates the complexities and financial burden of funding research and treatment for DHDDS we just want to take a moment to thank the community for rallying behind Frances.” said Zoe Manville of Portugal. The Man. “We could not do this without your love and support and we hope you will join us this month as we raise awareness and funds for rare disease.”
All of the events are open to the public, as are all specialty merch drops and fundraisers. Below is a calendar of Rare Diseases Month events you can attend with Portugal. The Man, with proceeds going to Cure DHDDS and Frances Changed My Life.
